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CFS & not being able to sleep at night is just soul destroying. I just want to sleep 😭 #CFS #sleep
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the void shouts back into you retweeted
My specialist mentioned she thinks I could have #CFS/ #ME on top of #fibro I think she’s probably right Feeling a bit of grief—and anger, because again, convincing any doctor to listen and give a diagnosis will be an exhausting nightmare
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AutoTweet: Prognoza modelu sezonowego CFSv2 na 4 tygodnie wprzód. #pogoda #klimat #cfs
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Claus Ernst retweeted
Replying to @loy_daniel_de
@aekn_online Ärztekammer Niedersachsen,das wollen Sie sicherlich nicht so stehenlassen!Oder ist es wirklich Ihr Anliegen durch Angebote wie "Moderne Psychosomatische Diagnosen u. schwierige Patienten:#Fibromyalgie;#CFS;#MCS" somatisch Schwerkranke zu #diffamieren und #gefährden?
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Anyone out there in Aotearoa NZ with #LongCovid ? These are great sources of support and info: #LongCovid #ME #CFS Reddit sub r/cfs (free to join)
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Glenna Demeter retweeted
When #LongCovid emerged I wrote to my clinical leaders and queried the #IAPT approach towards #ME and #CFS. The scale of new #ME cases in the wake of a viral pandemic blew the psycho-social-bevahioural model of the illness out of the water. I didn't recieve a reply.
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2/2 But what is better than being in tune with nature, is nature being in tune with you. Today was hard, today was quite possibly one of the hardest days in my ME journey so far, maybe even my life. Then this… #swift #ME #CFS #nature #naturefix
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Mast cells #MCAS and #microglia inflammation contribute to the exacerbation of acute symptoms of #LymeDisease and #COVID and can accelerate neurodegenerative disease as well as promoting #dysautonomia via the vagus nerve. #ME #CFS #POTS lymedisease.org/lyme-covid-m…
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Why is my body like this. High HR, too-low BP, and me just sitting here quietly minding my own business and not doing anything. #POTS #ME #CFS #MECFS
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#LongCovid #CFS #ME #autoimmune all can be got into remission or reversed naturally, takes awhile, and know how.
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Unwilling member of the Donner Party retweeted
This week on InFocus we’ll update you on stories we discussed earlier this season, including parents whose children were returned by #CFS after being on the show, and the case of Odelia and Nerissa Quewezance. Join us Wednesday at 2 p.m. CT. #millenniumscoop #wrongfullyconvicted
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CM they/them ASD EDS MDD OA etc retweeted
Thank you for all of the support, I am overwhelmed and grateful,I am raising a complaint to try and prevent it happening to others. I felt invalidated yesterday and went from angry to upset. The doc has made me more determined to keep advocating and educating #LongCovid #CFS #ME
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