#SelteneNierenerkrankung ?
Auf der Patienten-Webseite finden Sie Infos zu vielen der etwa 300 Erkrankungen, so auch #ADPKD #ARPKD
#ERKNET- ist eine europaweite Organisation von Ärzten und Patientenvertretern mit dem Ziel die Versorgung von Patienten zu verbessern.
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4moms July Sleepversity Giveaway: Chelsea's Club wn.nr/Sw8DEL sharing because with our #arpkd baby in the nicu we could definitely use one when he gets out @4moms #4moms
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Laura shares her story of when her son Ethan received a #kidney and #liver #transplant and the difference #OrganDonation has made. Ethan was born with #ARPKD and was waiting for his #GiftOfLife for 3 years ❤️
facebook.com/308381019644605…
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Phenotypic Variability in Siblings With Autosomal Recessive Polycystic Kidney Disease ow.ly/Pyyq30sobUz @KIReports #openaccess #ARPKD
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Came in after a quick night at home. Rough night in the ICU. Healing though… #arpkd #arpkdchf #liverkidneytransplant #amazingQ
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Surgery is scheduled next week for Niko.
➡️ Nephrectomy (left kidney)
➡️ PD Catheter placed
➡️G tube placed
#arpkd #nephrectomy #dialysis #kidneydisease
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Our little #arpkd warrior needs to have a kidney removed. Please share or donate if you can. We need all the help we can get right now. Also link in bio for our other cash apps and info for Niko #arpkdbaby #kidneydisease #kidneyremoval #gfm #help
gofund.me/fba1e16d
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@PhilCollinsFeed my sweet ARPKD nicu baby #arpkd #arpkdbaby #KidneyDisease #pkd #nicujourney #smallbutmighty #duedate #tarzan
gofund.me/17bd19b0
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Meet our #ERKNet #ePAGs and learn more about 300 #RareKidneyDiseases like #aHUS, #ADPKD, #ARPKD and many others
erknet.org/news/meet-our-erk…
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Mommy and daddy got to hold me for the first time, go fund me link in bio to help us #nicu #arpkd #arpkdbaby #KidneyDisease #nicubaby #niculife #nicujourney #PrimeDayDreamDeals
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Go Luke!👊 #ARPKD
9 weeks since his kidney transplant & today he successfully completed his high school transition day ✅ ready for the next chapter 👊. Would not have been possible without our incredible NHS! @toriamos3 @LukeAmo09625467 @PKDCharity @Kidney_Research @AlderHey @afshin6666
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Niko hearing music for the first time. #nicu #itshappening #babygear #nicubaby #arpkd #arpkdbaby #nicujourney #nicumama #niculife #nicu @jackjohnson #jackjohnson
Share our GFM please
gofund.me/17bd19b0
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