Really important paper describing #longcovid experiences. V similar to the experiences of #pwme. #ahps please read esp if you doubt the long term impact of #pvfs conditions #longcovid #ME. @thecsp @WorldPhysio1951 @PhysiosForME @LongCOVIDPhysio @DoctorsWithME
Thank you. This one is the follow up (pre-print) but really gives voice to those with Long Covid: medrxiv.org/content/10.1101/…

7:39 AM · Jan 29, 2022

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I'll never forget how deeply shaken I was the first time I read an account of Long Covid. The writer described the symptoms I've lived with for more than 20 years, but they were horrified and outraged, 'this shouldn't be happening, someone should help me' was the feeling.
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It made me confront how far from normal my day to day life is, how wrong it is that people aren't horrified and outraged by this disease, how important it is to advocate for better bio-medical understanding. I'd been like a slow boiling frog, used to the neglect as if it's normal
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